International Fetal Cardiac Intervention Registry

The International Fetal Cardiac Intervention Registry (IFCIR) was established to improve the quality and outcomes of health care for fetal cardiac intervention candidates. This secure registry, developed by University of California, San Francisco, stores information about pregnant mothers and their babies who have been diagnosed with certain congenital heart problems. Nearly 5,000 mothers and babies worldwide are estimated to take part in this study.

SSM Health Cardinal Glennon St. Louis Fetal Care Institute is currently enrolling participants for the study. Patient medical information is collected during evaluation through the Fetal Heart Program at Cardinal Glennon St. Louis Fetal Care Institute and the Dallas Heart Center at SSM Health Cardinal Glennon Children’s Hospital.

Those who receive certain congenital heart diagnoses prenatally will be eligible to participate. Participants will be identified by a study ID number and their information will be combined with thousands of other with the same condition. Those who participate in the study will help many centers, along with the Cardinal Glennon St. Louis Fetal Care Institute, to improve care for fetal cardiac intervention candidates.

The primary investigator of this study is pediatric cardiologist, Dr. Renuka Peterson.

For more information call our research team at 314-268-4037 (toll-free: 877-776-3385). They can also be reached by email.